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Robert Packard Center for ALS Research @packardcenter

The Packard Center enables the best ALS scientists to collaborate and develop new treatments and find a cure for ALS, also known as Lou Gehrig’s disease.

Joined December 2009
  • Posts 2,644
  • Following 672
  • Followers 1,898
132 Photos and videos
We spent part of the week at the @AltumInc Funder's Forum in Virginia. The Packard Center utilizes Altum's Proposal Central to streamline our grants program and Altum brings users and funders together to collaborate and share ideas.
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Want to learn more about the £7.5M #LongitudePrizeOnALS? Join one of the welcome webinars to find out how the Prize works and how to get involved. Register here: 📅 9 July, 09:00 BST: bit.ly/3I6GGzT 📷 10 July, 17:00 BST: bit.ly/3GnE0gN #AIForGood #MND #ALS
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Robert Packard Center for ALS Research reposted
MND Association
@mndassoc
26 Jun 2025
Interested in finding out more about the Longitude Prize on ALS? Then listen to the latest episode of our Podcast series 'MND Matters' for all things @longitude_prize 🎙️#MND open.spotify.com/episode/5Q0…

MND Matters Episode 35 - Transforming MND research with AI: Longitude Prize on ALS

MND Matters by the MND Association · Episode

open.spotify.com
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Robert Packard Center for ALS Research reposted
Longitude Prize on ALS@longitude_prize
25 Jun 2025
🧠 The #LongitudePrizeOnALS is now live! This £7.5M challenge invites innovators across #biotech, #AI, and #data science to help accelerate #ALS treatment discovery. Join us in bringing AI to the fight against ALS. Learn more: bit.ly/442yOqy #LPALS #MND
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Congratulations to Packard-funded researcher, Dr. Johnathan Cooper-Knock (The University of Sheffield), one of eight outstanding scientists to receive the 2025 Lister Award in recognition of his pioneering MND research. Read more: sheffield.ac.uk/news/sheffie…
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Robert Packard Center for ALS Research reposted
HopOnACure@HopOnACure
23 Jun 2025
Great piece from @NPR and @WBUR's Here & Now. Listen and read here: wbur.org/hereandnow/2025/06/…

Grammy-winning musician John Driskell Hopkins on living and making music after an ALS diagnosis

Hopkins continues to perform with the Zac Brown Band.

wbur.org
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We’re proud to be funding the #LongitudePrizeOnALS, a £7.5m challenge prize to drive AI-led innovation to discover new drug treatments for #ALS. Find out how you can get involved at bit.ly/4kr2PY1 @mndassoc @Challenge_Works

Longitude Prize on ALS

The Longitude Prize on ALS is a global challenge to incentivise the use of AI-based approaches to transform drug discovery for ALS.

als.longitudeprize.org
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We are pleased to attend @ENCALS 2025 in Turin Italy this week. Encals is the European network to end ALS and this week we will hear about exciting progress from an international cadre of researchers, including many Packard advisors.
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Join the @youralsnetwork next educational webinar, "ASK ME: Recap of the 2025 Packard Center Annual ALS Research Symposium" on 5/22 5:00 PM PDT/8:00 PM EST. Christine Vande Velde, will provide an update our recent ALS Research Symposium. RSVP today at ow.ly/y3Io50VOarb
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Did you know that most ALS cases have no known cause or family history? This #ALSAwarenessMonth, help us solve the mystery of this devastating disease. Your gift fuels critical research bringing us closer to ending ALS. Make a difference today: packardcenter.org/give
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Thank you to the @ALSMNDAlliance, @ALSCanada, and @mndassoc for a great week of science, collaboration and informative and thought-provoking conversations. We greatly appreciated the Canadian hospitality during our stay in beautiful Montreal! 🇨🇦
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Excited for another day at the 35th International Symposium on ALS/MND. We've heard fascinating talks by several Packard Center-funded investigators and advisors and interacted new and existing partners.
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Dr. Jeff Rothstein announced the new @longitude_prize today at the Annual Int'l Symposium on ALS/MND. The Prize is a global initiative to incentivise the use of AI to transform drug discovery for the treatment of ALS. Packard is a proud to be a supporter of this project.
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Congratulations to Packard Center advisor Dr. Jonathan Glass (Emory University) on receiving the 2024 Forbes Norris award at the 35th Annual International On ALS/MND.
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We enjoyed hearing from our Hopkins colleague, Dr. Ambereen Mehta, who spoke today at the @Allied Professionals Forum. Dr. Mehta is a palliative care specialist at the Johns Hopkins Center for ALS Specialty Care and she presented on palliative care strategies for ALS clinicians.
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Robert Packard Center for ALS Research reposted
Rita Sattler@RitaSattler
3 Dec 2024
Please share this with your undergraduate students interested in a paid neuroscience internship for next summer! A unique opportunity to work with BNI researchers across all disciplines!
BarrowNeurological
@BarrowNeuro
3 Dec 2024
Our Summer #UndergraduateInternship Program is accepting applications for 2025! This paid internship allows students to work full time in a #neuroscience lab under the mentorship of a scientist or another area of Barrow. Learn more & apply by Feb. 14: bar.rw/undergrads
A past intern works in a neuroscience research lab at Barrow

ALT A past intern works in a neuroscience research lab at Barrow
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Excited to be a part of the @ALSMNDAlliance 2024 Alliance Meeting in Montreal this week. This week is all about bringing the global ALS community together.
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During this special time of year, it is important to pause and reflect on those things that are most meaningful to us. At the Robert Packard Center for ALS Research, we are grateful for our dedicated community of supporters and partners.
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Give the gift of hope on Tuesday, December 3, 2024. Make a gift to the Packard Center on Giving Tuesday. packardcenter.org/give. All gifts made will be matched dollar-for-dollar up to a total of $125,000.
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Steve McMichael was diagnosed with ALS in 2021. This past weekend he was inducted into the @NFL Hall of Fame surrounded by his former @ChicagoBears teammates. Included in the group was fellow HOF member & Packard Center board member Jim Covert. tinyurl.com/5pdcr2h4
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